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Cancers we treat

The malignant bone disease service (bone cancer) at University Hospitals of North Midlands cares for patients with sarcoma, secondary bone cancer and metastatic spinal cord compression. Members of the team include orthopaedic and spinal surgeons, radiologists, oncologists and nurse specialists and care is discussed in a multidisciplinary team meeting.

Sarcoma

Patients will be referred on a two-week pathway from sarcoma from their GP. An initial assessment of patients who may have a Sarcoma - cancer that starts in the bone or soft tissue (muscle, fat, blood vessels) of the limbs and body wall is undertaken. If following this assessment appointment the team feel that there is a strong possibility that the patient has a sarcoma they will make an urgent referral to the Royal Orthopaedic Hospital in Birmingham to confirm diagnosis and plan any treatment if needed. No treatment is undertaken prior to this referral. These initial assessment clinics are held within the orthopaedic outpatient/fracture clinic department situated on the ground floor of the main building of the hospital.

Following surgery at The Royal Orthopaedic Hospital, treatment such as chemotherapy or radiotherapy may be undertaken at the UHNS under a shared care agreement with the team in Birmingham.

 

Secondary bone cancer

Patients who have secondary bone cancer - cancer cells that have spread from another primary cancer i.e. breast or lung - may have surgery at UHNM but may also be referred to a specialist hospital unit in Birmingham dependent upon the surgery needed.

University Hospitals of North Midlands is a tertiary centre for spinal surgery which means that we provide specialised care, usually following referral from primary or other secondary care centres. We provide treatment for spinal tumours including those causing compression to the spinal nerves working in partnership with our oncology colleagues.

 

Orthopaedic surgeons

Mr I DosRemedios  Trauma orthopaedic surgeon/Sarcoma lead
Mr M Hamadto – Orthopaedic surgeon
Mr S Konduru – Cancer lead/specialist spinal surgeon
On call spinal surgeon

 

Oncologists

Dr N Sharma Chemotherapy Sarcoma
Dr C Connolly Radiotherapy Sarcoma
We work with all oncologists within the Trust when a patient requires treatment for secondary bone cancer.

 

Clinical Nurse Specialists

The Macmillan clinical nurse specialist for malignant bone disease is Stephanie Peake. Stephanie is supported by a Macmillan support nurse for malignant bone disease. Both roles are to provide support to each patient as they progress through their care pathway, acting as key workers for the patient and their family.  Both clinical nurse specialists are dedicated to providing you with a personal service, to be your named key worker and to support you through each step of your journey. They are also there to provide you with relevant written information on your condition, to explain your treatment and to answer any questions you may have.

Both CNSs work in partnership with ward staff and other clinical teams to ensure referrals to services both hospital and in the community are made. They can discuss clinical information or supply patient information leaflets and booklets.

The CNS team work from 8:00am to 4:00pm Monday to Friday 01782 675278 (an answer machine service is also available).


Further information and support

The Macmillan Cancer Support and Information Centre will:

  • Listen to how cancer is affecting your life
  • Provide a wide range of free booklets and other written information
  • Put you in touch with other sources of support such as local counselling services, benefits advisers and support groups

The centre is open Monday to Friday, 9am to 5pm

The address is:

The Macmillan Cancer Support and Information Centre
University Hospital of North Midlands
Ground Floor, Main Building, Newcastle Road
Stoke on Trent, ST4 6QG
Call us on 01782 676333 or
e-mail us at macmillancentre@uhns.nhs.uk

Please note, we are unrelated to the local Douglas Macmillan Hospice, despite the word Macmillan in both our names.

If you are making a special journey, please ring to make an appointment so you are not kept waiting

The Dove Service (support and counselling) is a local service provided at The Dudson Centre, Hope Street, Hanley - Mon-Fri 9am-5pm.Tel:  01782 683153

Macmillan Welfare Benefits Service at Disability Solutions
North Staffs Medical Institute
Hartshill Road, Stoke on Trent, ST4 7NY
Telephone: 01782 667321

Macmillan Cancer Support  www.Macmillan.org.uk       Helpline 0808 808 0000

Sarcoma UK

https://sarcoma.org.uk   Helpline 02072508271

Bowel cancer affects around 42,000 people in the UK every year and is the second most common cause of cancer deaths and the fourth biggest cancer in the UK. For every 100 people getting their FIT kit results 98 will have a normal result and two will have an abnormal result. The symptoms of bowel cancer are often attributed to other causes, for example piles, medication and polyps.

It is often not diagnosed until significantly advanced because many people do not like to approach their GP about the issue, or do not realise the significance of the symptoms. The symptoms of bowel cancer differ from person to person and not everyone with the disease shows symptoms.  

Symptoms

  • Blood in the poo
  • Going to the toilet more often
  • A change in your normal bowel habit
  • Lost weight and you don't know why
  • Lump in the tummy

Patients with a positive result will be invited to see a specialist nurse and may be referred for a colonoscopy, an examination of the lining of the large bowel (colon) using a tiny camera on the end of a flexible tube.

For every 100 people having a colonoscopy after an abnormal FIT test:

  • 13 will have a normal test

  • 25 will have minor findings needing no additional treatment

  • 53 will have adenomas that need to be removed

  • 9 will have cancer

Clinics

Nurse-led clinics are run at Royal Stoke Hospital and County Hospital and full details and clinic times are sent to patients with their invitation. Colonoscopy investigations take place in the endoscopy unit at Royal Stoke University Hospital and County Hospital.  

Our team

  • Dr Sandip Sen, Consultant Gastroenterologist; BCS Clinical Director, Accredited Screening Colonoscopist
  • Dr Srisha Hebbar, Consultant Gastroenterologist, Accredited Screening Colonoscopist
  • Dr Alison Brind, Consultant Gastroenterologist, Accredited Screening Colonoscopist
  • Dr Sarveson Rajkumar, Consultant Gastroenterologist, Accredited Screening Colonoscopist
  • Dr Arun Kurup, Consultant Gastroenterologist, Accredited Screening Colonoscopist
  • Dr Cordelia Howitt, Lead Pathologist
  • Dr Ingrid Britton, Lead Radiologist
  • Carol Beeston, Lead Specialist Screening Nurse
  • Gloria Garlick, Screening Nurse
  • Adrian Black, Screening Nurse
  • Deborah Maccioni, Screening Nurse
  • Rachel Owen, Screening Nurse
  • Edna Beaty, Screening Nurse
  • Amanda Baggaley, Screening Nurse
  • Gregory Seadon, Screening Nurse
  • Carol Wheatley, Screening Nurse
  • Ana Chapa, Bowel Scope Discharge CSW
  • Angela Power, Bowel Cancer Screening Programme Manager
  • Julie Holland, Snr Bowel Cancer Screening Programme Administrator
  • Karen Davies, Lead Bowel Cancer Screening Programme Administrator
  • Louise Booth, Bowel Scope Coordinator
  • Kathleen Pointon, Bowel Cancer Screening Programme Administrator
  • Diane Jones, Bowel Cancer Screening Programme Administrator

Contact us

  • Bowel cancer screening centre office: 01782 676643 (answer machine) or 01782 676642 (screening nurses) or lead nurse: 01782 676641
  • Email: bcsp@uhnm.nhs.uk
  • Screening Hub Free telephone helpline: 0800 707 60 60

The Bowel Cancer Screening Centre is open Monday to Friday between 8.00am and 4.30pm.

For further information regarding the Bowel Cancer Screening Programme please visit www.bowelcanceruk.org

Support and further information

The Macmillan Cancer Support and Information Centre will:

  • Listen to how cancer is affecting your life
  • Provide a wide range of free booklets and other written information
  • Put you in touch with other sources of support such as local counselling services, benefits advisers and support groups

The address is: 

The Macmillan Cancer Support and Information Centre
University Hospitals of North Midlands
Ground Floor, Main Building
Newcastle Road
Stoke on Trent
ST4 6QG

Contact on 01782 676333 or e-mail macmillancentre@uhnm.nhs.uk

Monday to Friday between 9.00am and 5.00pm

Please note, we are unrelated to the local Douglas Macmillan Hospice, despite the word Macmillan in both our names. If you are making a special journey, please ring to make an appointment so you are not kept waiting.

Our brain and central nervous system cancer service provides surgery, oncology (chemotherapy/radiotherapy) and palliative treatments for people with brain and spinal cord cancers. The team also provide surgical treatment for patients from Shrewsbury and Telford Hospitals NHS Trust and Leighton Hospital in Crewe.

University Hospitals employs a multidisciplinary team who will treat and care for you throughout your journey. The team consists of neurosurgeons, neurologists, oncologists, cancer nurse specialists, physiotherapists and occupational therapists. Having the input of staff from a variety of clinical backgrounds helps give a rounded, complete view of each patient's case, and therefore results in better care.

We understand the complex emotions and pressures that come with a cancer diagnoses and the subsequent treatment. We therefore take every measure possible to ensure you are made comfortable during your treatment, including quiet rooms to enable you to speak in peace, away from the business of the wards.

At your diagnosis you will have the opportunity to concentrate properly on what is being said to you and discuss sensitive matters in private with your clinician and specialist nurse. A consultant will sit with you and explain your diagnosis, along with possible treatment options. They will be accompanied by a cancer nurse specialist, who is there to support you and talk to you about your feelings.

Your treatment pathway

Before any treatment is given you will meet with the neurosurgeon treating you and usually with a specialist nurse and a relative or friend for your support.  They will then discuss your condition and treatment plan with you. This may involve an operation to remove or biopsy the tumour. Sometimes certain tumours are best managed without surgery if that is considered more appropriate.

After the specimen report has been received from the laboratory, they will meet with you again and discuss the results with you in more detail, with the further treatment plan. Some tumour types will not need further treatment, but others will need radiotherapy, chemotherapy or both. You will need to be referred to an oncologist if further treatment is necessary. You will then receive brain scans for several years.

Multi-disciplinary Team (MDT)

Neurosurgeons

Mr H Brydon (Clinical Lead for brain tumours)

Ms E Albanese (brain tumours)

Mr R Price (spinal and brain tumours)

Mr N Tzerakis and Mr R Price (spinal tumours)

Mr Shaw (skull base tumours)

Neurologists: Dr J Partridge and Dr M Mockova

Oncologists: Dr S Joseph

Cancer Nurse Specialist: Catharine James and Support Tumour Nurse Louise Montgomery

As well as Neuro-psychologists, Radiologist, physios and OTs


Our Clinical Nurse Specialists

The role is to provide support to each patient as they progress through their care pathway. They will walk you through each step of your journey and are dedicated to providing you with a personal service, to be your named Key Worker.

You may be offered a Holistic Needs Assessment (HNA). Many patients find having an assessment helpful as it can help to identify what help is available. A HNA will be offered at certain times during your care, this may include:Around time of diagnosis or start of your treatment, The end of your treatment - when your surgery, chemotherapy or radiotherapy has been completed, Any time that you ask for one

You can contact your Clinical Nurse Specialist if you have any issues you wish to discuss.​

Your specialist nurses are also there to provide you with Patient Information Leaflets: These are available for you to take, and contain information on your type of cancer, the treatments available, and advice on benefits and support groups/useful contacts. To answer any questions you may have. The specialist nurses work in partnership with ward staff to ensure that, where appropriate, referrals to other services, such as local community cancer and palliative care teams, are made.

 As your key worker they can provide the following: Up to date clinical information, for example through discussion, or through distribution of Patient Information Prescription, which is individual to your needs. You can also discuss a variety of issues (depending on their relevancy to you) including:

•Practical advice and answers to your questions

•Emotional support

•Referral to other services, such as to Support groups

•Advice on how to obtain a wig

•Surgery

•Radiotherapy and chemotherapy

•Benefits/financial entitlement

•Other support services including social services, home and hospice care

•Emotional and psychological support and counselling

•Symptom management

•Fatigue management

•Employment

•Driving and holiday travel

•Help with adaptations for the home/environmental aids

•Medications

•Local and national support groups

•Contact point for other member so the team

The Clinical nurses specialist work from 9:00am to 5:00pm on Monday to Friday and are available to speak to either by phone or in person. An answer machine service is available for when they are not in the office. If you leave a message they will return your call as soon as possible (this may not be the same day).

Contact details: Catharine James and Louise Montgomery: 01782 675272

Neurosurgical Ward 228: 01782676228

Further information and support

The Macmillan Cancer Support and Information Centre will: Listen to how cancer is affecting your life. Provide a wide range of free booklets and other written information. Put you in touch with other sources of support such as local counselling services, benefits advisers and support groups. The centre is open Monday to Friday, 9am to 5pm

The address is: The Macmillan Cancer Support and Information Centre, University Hospitals of North Midlands, Ground Floor, Main Building, Newcastle Road, Stoke on Trent, ST4 6QG. Call us on 01782 676333 or e-mail us at macmillancentre@uhns.nhs.uk

Please note, the information centre is unrelated to the local Douglas Macmillan Hospice, despite the word Macmillan in both our names.

If you are making a special journey, please ring to make an appointment so you are not kept waiting

Other Information and support group information

Brain Tumour Support has joined with the University Hospital of North Staffordshire NHS Trust to establish a support group in Staffordshire.

The groups are open to anyone who has been affected by a brain tumour, whether you are a patient, a family member, a friend or a carer. 

Meetings are held at The Carer's Centre, North Staffs Carer's Association, 1 Duke Street, Fenton, Stoke on Trent  ST4 3NR. The meeting is normally on the third Thursday of the month, at 1.30pm – 3.30pm and are held bi-monthly at the Hamar Centre Therapy Room, Royal Shrewsbury Hospital, North Mytton Oak Road, Shrewsbury SY3 8XQ and are normally on the second Monday of the month, at 11.00am – 12.30pm.

For more details of the group and other support available please contact Christine Bettson, Brain Tumour Support Worker for Staffordshire and Shropshire

Mobile: 07711 597169. Email: christine@braintumoursupport.co.uk.  Support Services Line: 01454 422701​

At UHNM, we understand the complex emotions and pressures that come with a cancer diagnosis and the subsequent treatment, both for the child concerned and the parents or carers. We therefore take every measure possible to ensure that everyone is made as comfortable as possible during the child's treatment.

Our paediatric oncology service provides chemotherapy and supportive treatments for children with cancer.  We are a shared care centre, which means that other specialist centres, such as Birmingham Children's Hospital, Manchester Children's Hospital and Alderhey Hospital  Liverpool  provide specialist advice, but most of the treatment is provided here.

A multidisciplinary team will care for your child throughout their journey. The team consists of paediatric surgeons, paediatricians, oncologists, a clinical psychologist, community staff, physiotherapists, and a clinical nurse specialist. Having the input of staff from a variety of clinical backgrounds helps give a rounded, complete view of each child's case and therefore results in better care.


On the ward

  • Patient information leaflets - We provide a wide range of simple, informative and colourful leaflets, some aimed at parents, some aimed directly at children. They give information and advice on many aspects of care, for example mouth hygiene and going 'Back to School' a vast variety of other leaflets are also kept in the day unit
  • School teacher - A school teacher is available on the unit to give patients individual attention and help them with their studies. The school teacher can provide home visits if necessary and we liaise with schools to ensure we provide a system that meets everyone's needs
  • Play specialists - Our play specialists are trained in various forms of distraction therapy to help children when they are undergoing procedures which may cause them distress, such as injections
  • Patient record book  -  This book is given out by the specialist centres but is the patients' own to keep. It allows you to keep a record of visits and results. This should help you to feel more organised and confident about your child's care
  • Children's picture books - We supply children's picture books which are designed to tell children about having cancer in a friendly but informative way. There are also some books aimed at parents and grandparents

Clinical team, contacts and clinic information

The clinical team you are most likely to meet:

  • Paediatricians: Dr A Kumar, Dr S Thompson and Dr L Roe
  • Support nurses:  Claire Butler, Penny Holt and Katie Aspen
  • Clinical psychologist: Dr Carole Martin
  • Clinical nurse specialist: Julie Eaton

Contacts

  • Oncology day unit: Ward 217b, 01782 675147
  •  Oncology: Ward 216, 01782 675217

Clinical nurse specialist

The clinical nurse specialist for children's cancer/paediatric oncology is Julie Eaton. Julie's role is to provide constant support to each patient and their family as the care pathway is followed. She will walk you through each step of the journey and is dedicated to providing a personal service. Julie is also there to provide relevant written information on your child's condition, to explain their treatment and answer any questions you may have. She works in partnership with ward staff to ensure that, where appropriate, referrals to other services, such as local community cancer and palliative care teams, are made.

Julie also visits and liaises with schools to ensure that your child's educational and emotional needs are met as closely as possible. She educates teachers on what to expect from a child suffering with cancer, in terms of how they will behave, look, think and feel, and with regards to being watchful and aware of their condition throughout the day, for example, spotting warning signs that they might be feeling tired or ill.

Through Julie, you will be able to access:

Up to date clinical information, for example through discussion, or through distribution of patient information leaflets and booklets

  • Practical advice and answers to your questions
  • Emotional support
  • Referral to other services (if appropriate) such as to community groups
  • Advice on how to obtain surgical appliances if necessary

You can also discuss a variety of issues (depending on their relevancy to you) including:

  • Surgery
  • Radiotherapy and chemotherapy
  • Other support services including social services, home and hospice care
  • Emotional and psychological support and counselling
  • Symptom management
  • Fatigue management
  • Employment, benefits/financial entitlement, driving and holiday travel
  • Help with adaptations for the Home/environmental aids
  • Medications

Julie also runs a bereavement support group with Dr Carole Martin and can make home visits if necessary. Julie works four days a week and is available to speak to either by phone or in person on these days. An answer machine service is available for when she is not in; if you leave a message she will return your call as soon as possible. Email: julie.eaton@uhnm.nhs.uk

Clinics

Outpatient clinics are held in the Children's Centre at the Royal Stoke University Hospital on a Tuesday afternoon.

The Macmillan Cancer Support and Information Centre - This is a local service provided by the University Hospitals of North Midlands from the Central Outpatients Department.  The centre offers advice, help and support on a clinical, emotional and practical level. Email: macmillancentre@uhns.nhs.uk

Further information and support

The Macmillan Cancer Support and Information Centre will:

  • Listen to how cancer is affecting your life
  • Provide a wide range of free booklets and other written information
  • Put you in touch with other sources of support such as local counselling services, benefits advisers and support groups

The centre is open Monday to Friday, 9am to 5pm

The address is:

The Macmillan Cancer Support and Information Centre
University Hospitals of North Midlands
Ground Floor, Main Building, Newcastle Road
Stoke on Trent, ST4 6QG
Call us on 01782 676333 or
e-mail us at macmillancentre@uhns.nhs.uk

Please note, we are unrelated to the local Douglas Macmillan Hospice, despite the word Macmillan in both our names.


If you are making a special journey, please ring to make an appointment so you are not kept waiting 


Family-run support group

Some of the family members of our patients run a support group, which meets once every month. The date and venue varies but posters in the day unit advertise future dates. It provides an opportunity for people who find themselves in very similar situations to chat, share their feelings and give support and help to each other.

Bereavement group

We run a bereavement group, which meets on every second Tuesday of the month at the Medical Institute on Hartshill Road, Newcastle under Lyme, Staffordshire. The group is run by Julie Eaton, Clinical Nurse Specialist and the clinical psychologist and provides an opportunity for family and friends who have lost someone they love to come together for shared support and counseling. 

Bereavement visits

Losing a child is a very upsetting experience.  Our Clinical Nurse Specialist will make home visits to support you when necessary. 

Benefits advice

Our clinical nurse specialists provide advice on how to apply for disability living allowances and other benefit support. They can also provide information on special holidays/caravan sites available for patients and their families at very low rates. 

Charities

Our colorectal cancer service provides investigations and diagnosis for colorectal cancer. We offer a range of cancer treatments including surgery, oncology (chemotherapy/radiotherapy) and palliative treatments for people with colon, rectal and anal cancers.

University Hospitals employs a multidisciplinary team who will treat and care for you throughout your journey. The team consists of colorectal surgeons, gastroenterologists, oncologists, radiologists, pathologists and cancer nurse specialists. Having the input of staff from a variety of clinical backgrounds helps give a rounded, complete view of each patient's case and therefore results in better care.

Your treatment pathway

We understand the complex emotions and pressures that come with a cancer diagnosis and the subsequent treatment. We therefore take every measure possible to ensure you are made comfortable during your treatment, including quiet rooms to enable you to speak in peace, away from the busy wards.

At your diagnosis you will have the opportunity to concentrate properly on what is being said to you and discuss sensitive matters in private with your clinician and specialist nurse. A consultant will sit with you and explain your diagnosis, along with possible treatment options. They will be accompanied by a colorectal cancer nurse specialist, who is there to support you and talk to you about your feelings. Treatment may involve an operation to remove a part of your bowel where the cancer is situated. 

Sometimes certain cancers are treated with chemotherapy or radiotherapy alone if that is considered more appropriate.  Some other cancers are treated with a combination of chemotherapy, radiotherapy and surgery. You will need to be referred to an oncologist if your cancer requires chemotherapy or radiotherapy. Treatment is individualised. Your family is also welcome to come to the consultation if you prefer them to be there.

Multi-disciplinary Team (MDT)

Colorectal Surgeons

•Mr Martin Farmer

•Mr  Robin Dawson

•Mr Achilles Tsiamis

•Mr Neil Yeomans

•Mr Timothy Bullen

•Mr  David Luke

•Mr Phillip Varghese

•Mr Veerabhadram Garimella

  Mrs Anne Gaunt

Oncologists

•Dr Selvaraj Giridharan

•Dr Caroline  Connolly

•Dr  Neelam Sharma

Colorectal Nursing Team

  • ANP – Julie Rust

  • ANP – Julie Chapman

  • ANP – Samantha Zinyemba

  • ANP – Kirsty Knox

  • ANP - Jane Wilcox

  • ANP   - Michelle Amos

Telephone 01782 679843

Clinical Nurse Specialists

  • Lead Colorectal  Nurse Specialist Dorothy Munyanyi

  • Colorectal Nurse Specialist Lisa Watts

  • Colorectal Nurse Specialist Louise Butler

  • Colorectal Nurse Specialist Linsey Page


Clinical Nurse Specialist

  • Lead Colorectal  Nurse Specialist Dorothy Munyanyi

  • Colorectal Nurse Specialist Lisa Watts

  • Colorectal Nurse Specialist Louise Butler

  • Colorectal Nurse Specialist Linsey Page

  • Telephone 01782 672801-Answerphone

Macmillan Colorectal Navigator – Donna Wooldridge

Telephone 01782 672801 – Answer phone

Radiologists, gastroenterologists and pathologists also form part of the MDT.

Clinical Nurse Specialists (CNS)

The colorectal cancer nurse specialist provides support to each patient as they progress through their pathway. The CNS will take the patient through each step and is dedicated to providing each patient with an individual service. They also work closely with the team of doctors on the wards and in the outpatient clinics at both Royal Stoke and County Hospital.

Your nurse specialist acts as your key worker and will provide written information on specific colorectal conditions, explain treatments and is there to answer any questions you may have. They work in partnership with clinic and ward staff to ensure that referrals to other services, such as local community cancer and palliative care teams, are made in a timely fashion. They will provide you with:

  • Up-to-date clinical information, through discussion or distribution of patient information leaflets and booklets
  • Holistic needs assessment
  • Practical advice and answers to questions
  • Emotional support
  • Referral to other services (if appropriate) such as to community groups

Patients can also discuss a variety of issues, including:

  • Surgery
  • Radiotherapy and chemotherapy
  • Side effects of cancer treatment
  • Benefits/financial entitlement
  • Support services including social services, home and hospice care
  • Emotional and psychological support and counseling
  • Symptom and fatigue management
  • Employment, driving and holiday travel
  • Medications
  • Health and well-being events
  • Treatment summaries
  • Local and national support groups

The Colorectal CNS team work Monday - Friday, 8.30 – 4.30pm excluding bank holidays. They can be contacted via their answerphone on 01782672801.  Please leave your name, hospital number or date of birth and telephone number and they will get back to you.

Further information and support

Support Groups

We have an online  Facebook group you can join:  Royal Stoke Bowel Cancer Support Group (Bottoms Up Club). The group provides a flexible and convenient platform for patients, family members and friends to discuss with others in similar situations and share their experiences and feelings.

The Macmillan Cancer Support and Information Centre will:

  • Listen to how cancer is affecting your life
  • Provide a wide range of free booklets and other written information
  • Put you in touch with other sources of support such as local counseling services, benefits advisers and support groups

The Macmillan centres are both at Royal Stoke and County Hospital is open Monday to Friday, 9am to 5pm.

The address is:


The Macmillan Cancer Support and Information Centre
University Hospitals of North Midlands
Ground Floor, Main Building, Newcastle Road
Stoke on Trent, ST4 6QG

You can contact us by telephone: 01782 676333 (Royal Stoke) or 01785 236075 (County) or e-mail us at macmillancentre@uhnm.nhs.uk

Colostomy Association

www.colostomyassociation.org.uk

Freephone: 0800 328 4257

Outlook Ostomy Support Group

This a local support group for patients with a stoma.

Chairperson: Moira Hammond, Secretary: Joan Brough, Flat 2 (Rear of 42), Ashlands Road, Stoke-on-Trent, ST4 6QS, Tel: 01782 710828, E-Mail: jbrough@btinternet.com

National Support Groups

Bowel Cancer UK
bowelcanceruk.org.uk
Helpline
0800 707 60 60

The gynaecology cancer service provides surgery, oncology (chemotherapy/radiotherapy/brachytherapy) and palliative treatments for people with ovarian, endometrial, cervical, vaginal and vulva cancers. The team also provides surgery and brachytherapy treatment for patients from Shrewsbury and Telford Hospitals NHS Trust.

About the service

During your journey you will be looked after by a dedicated team of specialists. The team will plan and coordinate your care with you. The multidisciplinary team (MDT) consists of gynaecological cancer surgeons, oncologists, clinical nurse specialists, histopathologists (who look at your biopsies/surgical specimens under the microscope)  and radiologists (who report your scans). The team meet once a week on a Monday morning to discuss your diagnosis and plan the best care for you. Having the input of specialist staff from a variety of clinical backgrounds helps give a rounded, complete view of each patient's case and therefore results in better care.

We understand the complex emotions and pressures that come with a cancer diagnosis and the subsequent treatment. We therefore take every measure possible to ensure you are made as comfortable as possible during your treatment. 

We are a specialist centre for this type of cancer treatment and have a huge catchment area for patients. We receive referrals from other trusts within our network, even going as far as Wales.

Quiet rooms are available, where we can speak to you in peace, away from the hubbub of the wards and the busy outpatient clinic environment. You will usually be taken here whilst given your diagnosis, so that you can concentrate properly on what is being said to you and discuss sensitive matters in private with your clinician and nurse specialist. A consultant will sit with you and explain your diagnosis, along with possible treatment options. They will be accompanied by a clinical nurse specialist who is there to support you and help with any questions or concerns you may have and act as your point of contact. Your family are also welcome to attend if you wish.

One-to-one appointments with your clinician can be requested. The quiet rooms can be reserved for this purpose and your family and friends are welcome to attend as well. The ward staff or your clinical nurse specialist can organise the appointment for you.

Pre-assessments are carried out for patients coming for minor and major surgery.

New and follow-up clinics enable our clinicians to assess your condition and share information and treatment options. Tests may also be organised, if necessary. It also gives you an opportunity to discuss how you are feeling and let us know if there is anything further we can do to help.

Nurse-led appointments offer an opportunity to discuss your condition or to discuss your emotional wellbeing after treatment. Not all patients will need this level of support.

There is a counselling team available. Please speak to your clinical nurse specialist if you would like them to refer you to this service for extra support.

Our clinical nurse specialists are able to meet with you and your family if you require advice on how to cope with your condition once you're back at home. The ward has a dedicated team of discharge facilitators who will help arrange any extra support you may require.   

Sadly, some types of gynaecological cancer can affect your ability to continue in a normal sexual pattern. The effects of this can be emotionally distressing for both you and your partner and we therefore provide psychosexual counselling for patients who are affected in this way.

The Staffordshire Gynae Cancer Support Group is facilitated by the clinical nurse specialist team and is a group that welcomes Staffordshire patients who have been affected by a gynaecological cancer. The group meet once a month. Please contact the clinical nurse specialist team for more information.

Clinical team, contacts and clinics

Gynaecological cancer surgeons

Mr R Todd, Mr M Kodampur, Ms S Soo-Hoo
Mr N Raut
Mr K Chin

Oncologists

Dr R Bhana
Dr L El-Helw
Dr S Joseph

Clinical nurse specialist team

The clinical nurse specialist for gynaecological cancer is Sarah Bielby. Sarah is supported by specialist support nurse Lyndsay Camm.  They may also be referred to as your "key worker". Sarah and Lyndsay will share information about your wishes and needs at the weekly team meeting. They are trained nurses with skills and experience in caring for women with a gynaecological cancer.  They will help you by answering any questions you may have and provide written information on your diagnosis, treatments or symptoms.

The clinical nurse specialist team work in partnership with ward staff to ensure referrals to other services, such as local community cancer and palliative care teams, are made.

Lyndsay and Sarah can also discuss a variety of issues, including:

•Surgery and recovery

•Radiotherapy and chemotherapy treatments

•Finding you support and information on how to address financial worries or concerns

•Other support services including social services, home and hospice care

•Emotional and psychological support and counselling

•Symptom management

•Fatigue management

•Employment

•Driving and holiday travel

•Help with referring to relevant teams to obtain adaptations for the home/environmental aids

•Medications

•Local and national support groups

•Contact point for other member of the team

Sarah and Lyndsay are available from 8:00am to 4:00pm Monday to Friday, 01782 672799 . An answer machine service is available where messages can be left outside of this time. Please leave a message and they will return your call.

You contact them on a pager via Hospital Switchboard on 01782 715 444 or email sarah.bielby@uhnm.nhs.uk  Lyndsay.camm@uhnm.nhs.uk

Clinics

Clinics to see the surgeons are held in surgical outpatients 1.

Clinics to see the oncologists prior to treatment and during treatment are held in the cancer centre or the outpatient department at County Hospital.

Further information and support

The Macmillan Cancer Support and Information Centre will:

•Listen to how cancer is affecting your life

•Provide a wide range of free booklets and other written information

•Put you in touch with other sources of support such as local counselling services, benefits advisers and support groups

The centre is open Monday to Friday, 9am to 5pm.

The address is:

The Macmillan Cancer Support and Information Centre
University Hospitals of North Midlands
Ground Floor, Main Building
Newcastle Road
Stoke on Trent
ST4 6QG

Call us on 01782 676333 or

e-mail us at macmillancentre@uhns.nhs.uk

Please note, we are unrelated to the local Douglas Macmillan Hospice, despite the word Macmillan in both our names.

If you are making a special journey, please ring to make an appointment so you are not kept waiting

The Dove Service
(support and counselling) is a local service provided at The Dudson Centre, Hope Street, Hanley - Mon-Fri 9am-5pm
Tel:  01782 683153

Macmillan Welfare Benefits Service at Disability Solutions
North Staffs Medical Institute
Hartshill Road, Stoke on Trent, ST4 7NY
Telephone: 01782 667321

Douglas Macmillan Hospice
(inpatient and day centre facilities) Barlaston Road Blurton, Stoke-on-Trent. Tel: 01782 344300

Macmillan Cancer Support

Macmillan.org.uk
Helpline 0808 808 0000 

The Head and Neck Multidisciplinary Team (MDT) is a Trust-wide multi-professional group serving a population of approximately 800,000 living predominantly in North Staffs, Stoke-On-Trent and South Staffs. However, there are flows into the county across the borders leading to patients being treated from Shropshire and Cheshire.

For health services, head and neck cancers present particular challenges because of the complexity of the anatomical structures and functions affected, the variety of professional disciplines involved in caring for patients and the relatively sparse geographical distribution of patients requiring specialised forms of therapy or support.

 

 Head and Neck Cancers can have devastating effects on the lives of patients; the treatment can be disfiguring and often makes normal speech and eating difficult.

The Head and Neck team provides a diagnostic and treatment service at the Royal Stoke University Hospital and a diagnostic/follow up service at County Hospital (Stafford) all treatment modalities are carried out.

The MDT has the combined function of confirmation of diagnosis, treatment and management of all newly identified, recurrent or metastatic disease and as such communicating with appropriate agencies regarding rehabilitation and survivorship.

The Multidisciplinary Team (MDT) is made up of several different health care professionals who are specialists in diagnosing and treating Head and Neck cancer.

The team meet weekly and all contribute towards planning care. The Head and Neck Clinic is held each Monday morning in the ENT Department on the Ground Floor of the Main Building. The Thyroid clinic is held on Thursday mornings.  These clinics are where the team will discuss and plan treatment options, where patients will be reviewed and monitored.

Our staff understand the complex emotions and pressures that come with a cancer diagnoses and the subsequent treatment. The Trust takes every measure possible to ensure you are made as comfortable as possible during your treatment.

Core members

Ear Nose and Throat Surgeons

Mr R. Hughes

Mr A George

Oral and Maxillofacial Surgeons

Mr P Grime

Mr T Malins

Mr D Gahir  

Clinical Oncologists

Dr A Jamil

Dr D Gahir

Consultant Restorative Dentist 

Mr S Brindley                    

Histopathologist

Dr C Howitt

Dr P Simcock     

Radiologist

Dr J Joseph

Dr C Jadun

Clinical Nurse Specialists

Wendy Robson

Jacqueline Miller

Yvonne Harvey

Speech & Language therapist

Aisling Killen

Amy Lavis

Dieticians            

Sophie Harries

Richard Silvioli

Josh Beattie

 

Extended team members​

Lymphodema Nurse Practitioner

Rebecca Elwell

Physiotherapist

Sarah Smyth

Senior Maxillofacial Prosthetist

Julie Strzla

Dental Therapist( hygienist)

Rachael Taylor

Nutritional Nurse Specialist

Nicola Cooper

Radiotherapy Advanced Nurse Practitioner

Dawn Beetham

Advanced Radiographer Practitioner

James Bisson

 

Support groups

The laryngectomy support group meets on the first Tuesday of every month 2-4pm

The Head Cases Support group meets on the first Wednesday of the month 7.30-9.30pm

Thyroid Cancer friends-Staffordshire UK (face book page)

The groups provide a forum in which patients, both old and new, can meet. It is an opportunity to exchange experiences and stories, receive advice and information from trained clinicians, ask questions, and generally experience the benefit of engaging with others who understand them. A patient buddy system enables patients to meet and support each other along the way.

Staff from the head & neck team regularly attend the meetings, and are there as a contact point. They are highly experienced, clinically trained staff who can provide written information, and general expertise on many aspects of the disease, such as coping mechanisms, rehabilitation and ways to improve your quality of life.

Family and friends are welcome and encouraged to join patients when they attend the sessions, as it is important that they also have a strong support network during this difficult time.

The groups are intended not only to be informative, but enjoyable as well. The atmosphere is relaxed and informal, and there are always refreshments available. Members of the group are very active in fundraising for the cause, and have organised many events which have done much to raise both money and awareness in connection to this issue. Specific events are often organised in addition to the regular meetings; such as patient parties, luncheons, raffles, and Christmas parties. Again, these are enjoyable and valuable occasions which offer you the opportunity to meet and share experiences, advice and support.

The appointment of patient representatives is key to the successful running of the groups, and patients are welcome to become one if they wish to play an active role in representing the views and wishes of others.

Professionals from other areas of health work will sometimes be invited to join the group for a session. They will talk to offer information and insight on how other areas of medicine are related to conditions and how specialists in these areas can help you.

If you are interested in attending the support groups, or would just like to pop along to one of their sessions, please contact the clinical nurse specialist (01782-674130).

They will provide all the details necessary on how to join and where to go.

Or access the web sites (see below for address)

Local Support group

1. Head cases-staffs.org.uk

2. www.lostchordstoke.org.uk

3. Thyroid face book page

Please contact the CNS for access and directions

01782-674130


National support groups

1. Let's Face It

 72, Victoria Avenue, Westgate on Sea, Kent.

Tel-01843-833724

www.lets-face-it.org.uk

 2. National Association of Laryngectomy Clubs

 Suite 16, Tempo House, 15 Falcon Road, London SW112PJ.

Tel-020 7730 8585

www.laryngectomy.org.uk

 3. Changing Faces,

 The Squire Centre, 33-37 University Street, London WC1E 6JN.

Tel-0300 0120 275

www.changingfaces.org.uk

4. British Thyroid Foundation

 2nd floor, 3 Devonshire Place, Harrogate, North Yorkshire, HG1 AA.

Tel-01423 709 707

www.btf-thyroid.org

5. Butterfly Thyroid Cancer Trust

PO Box205, Rowlands Gill, Tyne and Wear, NE39 2WX

Tel-01207 545469

www.butterfly.org.uk

 

Further information and support

The Macmillan Cancer Support and Information Centre will:

  • Listen to how cancer is affecting your life
  • Provide a wide range of free booklets and other written information
  • Put you in touch with other sources of support such as local counselling services, benefits advisers and support groups

The centre is open Monday to Friday, 10am -4pm

The address is:


The Macmillan Cancer Support and Information Centre

Royal Stoke University Hospital

Ground Floor, Main Building, Newcastle Road

Stoke on Trent, ST4 6QG

Call us on 01782 676333 or

E-mail us at macmillancentre@uhnm.nhs.uk

Please note, we are unrelated to the local Douglas Macmillan Hospice, despite the word Macmillan in both our names.
If you are making a special journey, please ring to make an appointment so you are not kept waiting

This service provides investigations and diagnosis for lung cancer. We offer a range of cancer treatments including surgery, oncology (chemotherapy/radiotherapy) and palliative treatments for people with lung cancer and mesothelioma. The team also provides a surgical service for patients who attend Shrewsbury and Telford Hospitals NHS Trust.

University Hospitals employs a multidisciplinary team who will treat and care for you throughout your journey. The team consists of cardiothoracic surgeons, respiratory physicians, oncologists, radiographers, palliative care nurses, patient pathway coordinators and Clinical Nurse Specialists (CNS).

The input of a highly specialised group of thoracic experts helps give a rounded, complete view of each patient's treatment. We understand the complex emotions and pressures that come with a cancer diagnosis and the subsequent treatment. We therefore take every measure to ensure you are made as comfortable as possible during your treatment.

You will be seen by a consultant and their associates who will discuss investigations and findings along with possible treatment options. They will be accompanied by a Clinical Nurse Specialist, who is there to support you.

Clinical team

Respiratory Physicians
Dr I Hussain
Dr M Haris
Dr Bikmalla
Dr Khan
Dr Maddekar
Dr Khalil

Cardiothoracic Surgeons
Mr S Ghosh
Mr C Satur
Mr Q Abid

Oncologist
Dr S Giridharan
Dr A Jegannathen
Dr Vengalil

Clinical Nurse Specialist (CNS)
The lung cancer nurse specialist provides support to each patient as they progress through their pathway. The CNS will take the patient through each step and are dedicated to providing each patient with an individual-focused service. They also work closely with the team of doctors on the wards and in the outpatient clinics at both Royal Stoke and County Hospital.

Your nurse specialist will provide written information on specific lung conditions, explain treatments and is there to answer any questions you may have. They work in partnership with clinic and ward staff to ensure that referrals to other services, such as local community cancer and palliative care teams, are made. They will provide you with:

  • Up-to-date clinical information, through discussion or distribution of patient information leaflets and booklets
  • Practical advice and answers to questions
  • Emotional support
  • Referral to other services (if appropriate) such as to community groups


Patients can also discuss a variety of issues, including:

  • Surgery
  • Radiotherapy and chemotherapy
  • Benefits/financial entitlement
  • Support services including social services, home and hospice care
  • Emotional and psychological support and counseling
  • Symptom and fatigue management
  • Employment, driving and holiday travel
  •  Medications
  • Local and national support groups

The team work Monday - Friday, 8.30 – 4.30pm.  There is an answering service. If you need them, please leave your name, hospital number or date of birth and telephone number and they will get back to you.


UHNM staff

Lead Lung Cancer Nurse Specialist - Alison Bain

Associate Lung Cancer Nurse Specialists

Marie Dillon
Patrick Grove
Sarah Booth
Nicky Walker
Pamela Birks
Royal Stoke Hospital Tel: - 01782 674065 or 01782 674067
County Hospital Tel: - 01785 230670 or 01785 230977

Support groups

Lung Cancer Health Wellbeing Support and Survivorship Group

The group meets at the London Road Bowling Club, London Road, Newcastle-under-Lyme ST5 1LZ, on the last Wednesday of every month. The atmosphere is very friendly and informal and there is always plenty of tea, coffee and biscuits. The group provides an opportunity for patients, family members and friends to meet up with others in similar situations and share their experiences and feelings. There is also a range of activities available throughout the year and a nurse specialsit is on hand to give advice, information and support.

The Macmillan Cancer Support and Information Centre

Staff at the centre will listen to how cancer is affecting your life, provide a wide range of free booklets and other written information and put you in touch with other sources of support such as local counseling  services, benefit advisers and support groups.

The centre is open Monday - Friday, 10am-4pm. If you are making a special journey, please ring first.

The address is:

The Macmillan Cancer Support and Information Centre
University Hospitals of North Midlands
Ground Floor, Main Building, Newcastle Road
Stoke on Trent, ST4 6QG
Call us on 01782 676333
E-mail us at macmillancentre@uhns.nhs.uk


The Macmillan Cancer Support and Information Centre
University Hospitals of North Midlands
County Hospital
Ground Floor
Main Building
Weston Road
Stafford
ST16 3SA
01785 236075
e-mail us at macmillancentre@uhns.nhs.uk

Please note we are unrelated to the local Douglas Macmillan Hospice, despite the word Macmillan in both our names.

The Roy Castle Lung Cancer Foundation

4-6 Enterprise Way, Wavertree Tech Park, Liverpool, L13 1FB, Telephone: 0333 323 7200
Website: www.roycastle.org

United Kingdom Lung Cancer Coalition
Telephone: 0207 688 5555, website: http://www.uklcc.org.uk/

Macmillan Cancer Support
89 Albert  Enbankment , London SE1  7UQ
Telephone 02078407840

Mesothelioma UK Charitable Trust, Unit 116,Green Acres ,The Sidings  Station Road, Birstall ,Leicester LE4 3BR, Telephone 08001692409.


West Midlands Asbestos Support Team
Name of Contact: Doug Jewell, Address: 138 Digbeth, Birmingham, B5 6DR, Telephone: 0121 678 8883. 

Asbestos Support WM offer help and advice to people, and their families, who are suffering from asbestos related diseases. 

UHNM's skin cancer service provides surgery, oncology (immunotherapy, targeted therapy, chemotherapy and radiotherapy) and palliative treatment for people with skin cancers.  Our multidisciplinary team includes plastic surgeons, radiologists, oncologists, clinical nurse specialists (your key worker), a support nurse in skin cancer, ophthalmologists and dermatologists. 

The input of the multidisciplinary team, with a wide range of specialists central to the service, helps give a complete view of each patient's case and therefore results in better care.

 

About the service

Our staff understand the complex emotions and pressures that come with a cancer diagnoses and the subsequent treatment.  We take every measure to ensure you are made as comfortable as possible during your treatment, including:

  • Quiet rooms where private and confidential conversations take place away from the hubbub of the wards.  You will usually be taken here whilst given your diagnosis, so that you can concentrate properly on what is being said to you and discuss sensitive matters in private with our clinician and clinical nurse specialist
  • The clinical nurse specialists and support nurse help patients who have been diagnosed with Melanoma, Squamous Cell Carcinoma and rare skin cancer, ensuring patients are aware of sun protection, correct application of sunscreen and the undertaking of self-skin and lymph node examination
  • Clinical nurse specialists also take patients through the results of tests and will provide all relevant written information
  • The clinical nurse specialists have weekly clinics and see patients for their three monthly follow up appointment, ensuring patients are still in good health and recovering well
  • Health promotion sessions are run in popular and busy areas, such as county shows, main receptions of both Royal Stoke and County Hospital and local radio stations

 

Your clinical team

Plastic surgeons
Mr W Jaffe
Mr M Maher
Mr W Maamoun
Mr D Prinsloo
Mr A Ismail
Mr E Erel
Mr K Apostolou

Dermatologists
Dr M Paul
Dr R Rotarescu
Dr L Patrascu
Dr A Wong
Dr L Sharaf
Dr C Amarasena

Ophthalmologist
Mr J Bowyer

Oncologists
Professor M Brunt, Dr S Vengalil, Dr N Sharma

Radiologist
Dr N Lane

Histopathologist
Dr V Mudaliar

 

Clinical Nurse Specialists

  • Lead Clinical Nurse Specialist    Gwen Rylands
  • Clinical Nurse Specialist             Elizabeth Spittal
  • Specialist Support Nurse            Sheryl Templado
    (Rachel Cole provides our administrative support)


The specialist nursing team for skin cancer provide constant support to each patient as they progress through their care pathway.  They take the patient through each step and are dedicated to providing each patient with a personal service.  They undertake health needs assessments and provide patients with written information and explain treatments and answer questions.  At the end of patients' surgical treatment the specialist nurse will send an end-of-treatment summary to the patient's GP and share this information with each patient.

Clinical nurse specialists work in partnership with ward and outpatients staff to ensure that referrals to other services, such as local community and palliative care teams, are made.  Clinical nurse specialists have access to:

  • Up to date clinical information, through discussion or distribution of patient information leaflets and booklets
  • Practical advice and answers questions
  • Emotional support
  • Referral to other services (if appropriate) such as community groups
  • Advice on how to obtain surgical appliances


Patients can also discuss a variety of issues, including:

  • Surgery
  • Radiotherapy
  • Immunotherapy
  • Targeted therapy
  • Chemotherapy
  • Benefits/financial entitlement
  • Support services including social services, home and hospice care
  • Emotional and psychological support and counselling
  • Symptom and fatigue management
  • Employment, driving and holiday travel
  • Help with adaptations for the home/environmental aids
  • Medications
  • Moles local support group
  • Health and Wellbeing events

 

The working hours of the nursing team are 8.00am – 5pm Monday to Friday. They are available to speak to either by phone or in person on these days.  An answer machine service is available when they are not in due to being in clinic.

Royal Stoke tel:               01782 674699

County Hospital tel:        01785 234310

 

Further information and support

The Macmillan Cancer Support and Information Centre will:

  • Listen to how cancer is affecting your life
  • Provide a wide range of free booklets and other written information
  • Put you in touch with other sources of support such as local counselling services, benefits advisers and support groups

 

The centre is open Monday to Friday, 9am to 5pm.

The address is:

The Macmillan Cancer Support and Information Centre
University Hospitals of North Midlands
Royal Stoke University Hospital
Ground Floor, Main Building
Newcastle Road
Stoke on Trent
ST4 6QG
Tel:  01782 676333

Or

County Hospital
Weston Road
Stafford
ST16 3SA
Tel: 01785 257731

Email us at macmillancentre@uhnm.nhs.uk

Please note, we are unrelated to the local Douglas Macmillan Hospice, despite the word Macmillan in both our names. If you are making a special journey, please ring to make an appointment so you are not kept waiting.

 

The Moles Support Group

The group offers the opportunity for patients, family and friends to meet in a relaxed setting.  Members range from patients diagnosed in the last few weeks, patients on treatments and patients who have completed treatments and have been living with cancer for many years.

The group aims to help patients and relatives to cope with the worries, feelings and concerns that a cancer diagnosis brings, and to make sure that patients their families and friends have all the information and support they need.  Talking to someone who has been where you are can help to overcome distress and improve quality of life.

The Lead Clinical Nurse Specialist attends these meetings and arranges various relevant speakers to present to the group.

The Moles meet at 7pm on the first Thursday of each month at:

The Cornerstone Community Centre
65 Mill Street
Silverdale
Newcastle-under-Lyme
ST5 6PF

www.northstaffsmoles2.btck.co.uk

 

Other support groups

Veterans Agency for ex-servicemen and women   
Tel: 01562 825527

Changing Faces www.changingfaces.org.uk

Breast

Our mission statement

"Our patients can expect to be treated with dignity and respect. They will receive a high quality service delivered by a multi-disciplinary team facilitating the most efficient and effective pathway to diagnosis, treatment and follow-up care."

The breast care service at UHNM is provided by a Multidisciplinary Team (MDT), which means different healthcare professionals specialising in breast diseases. They provide care to a local population of 700,000. The team specialises in the treatment of both benign and malignant breast conditions providing surgery and treatment for both the breast screening service and symptomatic patients, dealing with approximately 650 new breast cancers annually.

The team work according to nationally recognised guidelines and are rigorously monitored to ensure compliance, taking a full and active part in National peer review and National Health Service Breast Screening Programme (NHSBSP) quality assurance visits.

A full list of guidelines and recommendations can be accessed via the relevant professional governing bodies. All team members adhere to the clinical codes of practice for their respective professional bodies.

The Breast Multi-Disciplinary Team (MDT)

The breast care team offers a multi-disciplinary team approach to the diagnosis and treatment of breast cancer. All newly diagnosed breast cancer cases are discussed at weekly multi-disciplinary team meetings. This helps the team to decide the best treatment plan for each unique individual case. In attendance are surgeons, radiologists, breast care nurses, pathologists and oncologists.  Following the diagnosis of breast cancer the team provides on-going treatment at the highest level.

Consultant Breast Surgeons

When patients are referred to a breast clinic they are allocated to one of our five consultant breast surgeons who oversee their care. Along with plastic surgeons, they provide a comprehensive in-house immediate and delayed breast reconstruction service, which includes the integration of plastic surgery techniques in order to preserve appearance without compromising local control of disease.

Our consultant breast surgeons are:

 

Professor R Kirby Consultant, Breast Surgeon

 

 

Mr S Narayanan Consultant, Oncoplastic Breast Surgeon

 

 

Mr S Soumian Consultant, Oncoplastic Breast Surgeon

 

 

Mr S Marla Consultant, Oncoplastic Breast Surgeon

 

 

Mr V Gopalan, Locum Consultant Breast Surgeon

 

Associate Specialists

These are senior surgeons who specialise in diagnosing and treating breast problems and who work with the consultant breast surgeons, making up the surgical breast team:

Mr E Nael Associate Specialist Breast Surgeon

Miss A Hasan Trust Speciality Doctor Breast Surgery

Consultant Plastic Surgeons

These surgeons specialise in immediate and delayed breast reconstruction:

Mr D Prinsloo Consultant Plastic Surgeon

Mr E Erel  Consultant Plastic Surgeon

Mr A Ismail Consultant Plastic Surgeon

Consultant Oncologists

An oncologist is a medical doctor who specialises in the diagnosis and treatment of cancer. Treatments include radiotherapy and chemotherapy, both of which are available on site at the UHNM Cancer Centre. We have four consultant oncologists specialising in breast cancer treatment:

Professor A Brunt, Consultant Oncologist

 Dr D Gahir, Consultant Oncologist

Dr A Jeganethan, Consultant Oncologist

Dr L El-Helw, Consultant Oncologist

 

Advanced Nurse Practitioners (ANPs)

ANPs are registered nurses educated at Masters level in advanced practice and have acquired expert knowledge and skills. The breast ANPs have worked previously as breast clinical nurse specialists and now work alongside breast surgeons and oncologists in new and follow-up clinics, diagnosing breast problems and supporting and monitoring patients on the self-managed pathway. Breast ANPs also provide the nipple-tattooing service.

Our ANPs are:

Helen Francis, Breast Advanced Nurse Practitioner (Breast Clinical Nurse Specialist for 30 years)

Julie Boulton, Breast Advanced Nurse Practitioner (Breast Clinical Nurse Specialist for 18 years)

 

Self-managed pathway (SMP) service

Helpline: 01782 674077


Breast care nursing team

All patients diagnosed with breast cancer are allocated a member of the breast care nursing team as their key worker to provide ongoing support as required throughout and after the treatment pathway. Our team members are:

Elizabeth Mellor, Breast Clinical Nurse specialist

Rachel Bayley, Breast Care Nurse

Lynne Scott, Breast Care Nurse

Hayley Simpson, Breast Care Nurse

Michelle Green, Breast Care Nurse

Caroline Laffin, Breast Care Nurse

Natasha Holloway, Breast Care Nurse 

To contact the breast care nursing team:

Royal Stoke: 01782 674077

County Hospital: 01785 230607

Pathologists

Breast pathologists examine tissue samples under the microscope including biopsy and post-surgical tissue. This helps to inform diagnosis, treatment options and the type of drugs breast cancers may be sensitive to. We have three consultant pathologists specialising in breast care at UHNM:

Dr L Hammond Consultant Histopathologist

Dr M Stephens Consultant Histopathologist

Dr S Sundararajan Consultant Histopathologist

Breast imaging team

The imaging team is led by five consultant radiologists and supported by an expert breast radiography team, including consultant radiographers, clinical specialist radiographers, advanced practitioners, radiographers, assistant practitioners, imaging department assistants and support workers. They direct and co-ordinate breast imaging tests to ensure all imaging abnormalities are thoroughly investigated at the diagnostic and treatment stages of care. They also oversee continued surveillance imaging investigations after treatment, routine breast screening and family history surveillance for high risk women for breast cancer.

Dr S Bajwa, Consultant Radiologist

Dr E Gunning, Consultant Radiologist

Dr Z Mohd-Isa, Consultant Radiologist

Dr S Salehi-Bird, Consultant Radiologist

Dr O Stankiewicz, Consultant Radiologist

Francine Mulenga, Consultant Radiographer

Fiona Willis, Clinical Specialist Radiographer

Bernadette Booth, Clinical Specialist Radiographer

Cathy Ruanne, Radiographer Advanced Practitioner

K Bailey, Radiographer Advanced Practitioner

J Ingram, Radiographer Advanced Practitioner

Michelle Ellitts, Superintendent Radiographer

To contact the breast imaging department, call 01782 674200.

What is a breast care nurse?

A breast care nurse or key worker is a specialist nurse who is trained to provide patients, their families and carers with information, physical and psychological care and support and give practical advice from diagnosis, treatment, rehabilitation and beyond. Breast care nurses have specialist knowledge in all aspects of breast cancer. They have completed specialist studies in breast care/oncology nursing, including advanced communication skills. They work only in breast care.

When will you see a breast care nurse?

Breast care nurses play a key supportive role in the pathway of care for patients undergoing investigations, diagnosis, treatment and beyond.

Everyone affected by breast cancer should be able to access support from a breast care nurse. They should be present at all key consultations in a patient's cancer journey and are the person who streamlines and co-ordinates care accessing specialities, rather like a case manager. If you would like a copy of your initial consultation, your results and your treatment plan, your breast care nurse will coordinate this for you. If required your breast care nurse can facilitate referrals to additional support services such as psychology, physiotherapy, genetics etc.

If you are diagnosed with breast cancer in between your breast screening appointments this is known as an interval cancer. The National Breast Screening Programme will routinely review all previous screening mammograms that were performed before you were diagnosed. If you have previously had breast screening and would like to discuss this further then please inform your breast care nurse.

How do I contact a breast care nurse?

The team of breast care nurses (key workers) at UHNM are based across two sites - in the breast care department at Royal Stoke University Hospital and in the breast unit at County Hospital. Breast cancer patients will be given the name and contact details for their individual breast care nurse (key worker) and should wherever possible see and speak to that nurse. During annual leave, study leave etc or when your nurse is not available, their colleagues will be able to help you.

To contact the breast care nursing patient helpline call:

Royal Stoke: 01782 674077

County Hospital: 01785 230607

Their working hours are Monday to Friday 9.00am - 4.30pm. The direct line is linked to an answer machine, which can take messages anytime but can only be answered during working hours. If you have an urgent enquiry out of hours and have been a recent in-patient, please contact the ward you were discharged from. If not, please contact your GP.

I have been diagnosed with breast cancer

Women and men diagnosed with breast cancer are cared for by a team of healthcare professionals, known as a multi-disciplinary team (MDT). Each person has their own area of expertise.

A breast care nurse is part of this team. They will be your key worker and provide ongoing support when discussing treatment options and making decisions about treatment and as required throughout and after the treatment pathway.

 

When will I discuss my treatment options?

There are many different treatments for breast cancer.  The team looking after you will advise about the appropriate option for you.  Further information will be provided by your doctors and your breast care nurse.

 

What is Breast Cancer?

There are many different types of breast cancer, including invasive cancer and pre-invasive breast cancer known as DCIS (Ductal Carcinoma In Situ).

Patients will need different treatments depending on the type of breast cancer that they have. For more information, click on the below links:

Facing breast cancer

DCIS

 

What will happen?

You will meet with a specialist to confirm your cancer diagnosis.

The specialist works as part of a multidisciplinary team (MDT) of cancer specialists who will help plan your treatment with you.

You will also meet your breast care nurse at this time, who will be your keyworker during your diagnosis and treatment.

 

What treatment will I have?

There are many different treatments for breast cancer. You will be advised by your specialist team what the best treatments options are for you and have the opportunity to discuss them in detail.

These may include:

Wide local excision

A wide local excision operation removes just the cancerous area with a small rim of normal breast tissue. The breast is treated with radiotherapy after a wide local excision. Sometimes this operation can be combined with a breast reduction (known as a therapeutic mammoplasty).

Mastectomy

A mastectomy removes all of the breast tissue from one side of the chest. A breast reconstruction can be performed at the same operation or at a later date after other treatments have been given.

Breast reconstruction can be done using silicone implants or tissue moved from other parts of the body such as the back called an LD (latissimus dorsi) flap or the abdomen (a DIEP or TRAM flap).

Lymph node surgery

Patients with an invasive cancer will usually have surgery to check the lymph nodes as part of their treatment.

Sentinel node biopsy – An operation to remove one to four lymph nodes from the armpit. An injection of isotope and blue dye is used to target the first lymph nodes the breast cancer would spread to.

Axillary node clearance – This operation removes all of the lymph nodes from underneath the arm to check for cancer spread.

Chemotherapy

A treatment that uses drugs to stop the growth of cancer cells, either by killing the cells or by stopping them from dividing. Chemotherapy can be used before (neo-adjuvant) or after surgery (adjuvant).

Radiotherapy

Radiotherapy is high-energy rays, used to damage cancer cells and stop them from growing and dividing. Like surgery, radiotherapy therapy is a local treatment; it affects cancer cells only in the treated area.

Targeted therapies

Treatments such as Trastuzumab (Herceptin) and Pertuzumab (Perjeta) are used to treat breast cancers that are HER2 positive. This is usually in combination with chemotherapy. All cancers are tested to see if they are suitable for this treatment.

Hormone therapies

Some breast cancers are sensitive to oestrogen. Drugs that block oestrogen (Tamoxifen, Anastrazole, Letrozole, Exemastane, Fasolodex, Zoladex) are commonly used to treat some breast cancers. This may be before or after surgical treatment. For patients who cannot have surgery these drugs can sometimes be used to keep cancers under control.

Bone therapy

Some patients with hormone sensitive breast cancer may benefit from injections of a bone treatment called bisphosphonates.

Clinical research

We are a leading clinical research unit and many of our patients are offered entry into a clinical trial as part of their treatment. This may mean they have early access to new treatments. Evidence shows that patients who enter clinical trials often have a better outcome.

Breast reconstruction

If you are facing breast surgery you may be considering breast reconstruction.

Reconstruction is not possible for all women but modern techniques have made it achievable for some. Combining breast cancer surgery with plastic surgery to provide the best cancer treatment and cosmetic outcome is known as oncoplastic surgery.

There is a highly trained team of oncoplastic breast and plastic surgeons at UHNM who routinely work together to provide a full range of breast reconstruction and re-shaping procedures.

The aim of breast reconstruction is to recreate a breast shape to try and match the remaining natural breast as closely as possible and often involves several operations to give the best result. Breast reconstruction can be carried out at either the same time (immediate) or at a later date (delayed). There will be opportunity to discuss treatment options and the specialist team will help guide you (using drawings and photos) to make a decision about surgery.

Options can include: 

Implant based reconstruction 

Pre-pectoral reconstruction with biological mesh (Braxon) 

Lattisimus Dorsi Flap 

DIEP 

Mammoplasty 

LICAP 

Lipomodelling/fatgrafting

Nipple tattooing

To make an appointment, call 01782 674201 or 01785 886010.

Breast prosthesis fitting

Restoring your breast contour after surgery is a very important part of aiding your endeavours to adjust to your diagnosis and your altered body image. We can help you achieve this by providing an external breast form (prosthesis) to be worn inside your bra. The aim is for you to attain an equal and balanced appearance when dressed. Silicone breast forms are normally fitted about 6 weeks after your surgery to give time for your wound to heal. You will be allocated an appointment to attend the fitting room at the hospital. In the meantime you will be fitted with a soft breast form before you leave hospital.

Diane will provide you with a free mastectomy bra at your first fitting. There is also a range of discreet partial breast forms for women who may be unbalanced following a wide local excision. We also supply stick on breast forms and a light weight range if preferred.

The normal life of prosthesis is approximately three years; however body changes may require you to change earlier than this. To book an appointment or if you have any queries about your breast form, please call 01782 674201.

Due to hygiene regulations we are unable to exchange bras.

The local breast surgery and mastectomy support group

Meets second Tuesday every month at Church of Nazarene, Smithpool Rd, Fenton.

 

Contact Betty on (01782) 388977, Jean on (01782) 329427, or Mary on (01782) 634056.

 

 

email: jjcape@yahoo.co.uk

 

Butterflies - Stafford

Meet monthly at the Consititutional Club, Lloyd St., 

A Stafford-based breast cancer support group for women and their husbands/partners.

Contact Alison Smith 01785 660193

email: alison.smith99@ntlworld.com

The Optimists

Meet monthly at Moorlands Hospital, Ashbourne Rd., Leek. 

A breast cancer support group based in the Staffordshire Moorlands.

Contact Ann (01298) 83362

email: leekoptimists@gmail.com

 

Pink Sisters Breast Cancer Support Group

Meet the second Monday every month 7:15pm at the Our Lady and St Michael Church, Keelings Road, Northwood ST1 2AL.

They also meet the fourth Thursday every month 7pm at Kidsgrove Athletic FC, 35, Hollinwood Rd, Kidsgrove ST7 1BQ.

Jackie Mackenzie on 07786 007315

pinksistersstaffs@gmail.com

 

 

 

Burntwood Breast Care

Meet third Wednesday of the month 10am - 1pm at Burntwood Library Contact Pauline: 07779 102272

 

 

 

Pinfold Pink

Meet on third Tuesday of every month from 4.30pm Penkridge medical practice, Pinfold Lane, Penkridge 

Contact Janet Peel: 01785 711124, Margaret Wooton: 01902 790936, or Joan Proctor: 01785 715540

email: janpeel2@sky.com

 

 

 

Terrible Titties

A new group covering Stafford, Stone and Stoke. If you feel a group is not for you, we will aim to pair you with a 'Breast Buddy' who you will be able to contact for support. Contact Rachel: 07792 550677 or Natasha: 07944 858231

email: info@terribletitties.co.uk

 

 

 

S.L.I.M.B.S

(A Lymphoedema support group) 

Contact Marjorie (Secretary): 07752 304636

 

Self-Managed Pathways of Care helpline at UHNM

Tel: 01782 674077

 

Breast care nurses at UHNM

Michelle Green, Liz Mellor, Rachel Bayley, Lynne Scott, Hayley

Simpson, Caroline Wheatley-Laffin, Natasha Holloway

Breast Care Nurses Clerical Support UHNM Beverley Belford & Immacolata (Maxine) Helming

Direct Line/Answerphone: 01782 674077

 

Disability Solutions

(For benefits advice)

Tel: 01782 638300

...or to go through the MacMillan Cancer Information and Support Centre, tel: 01782 676333

Email info@disability-solutions.net

Web: www.disability/solutions.net

 

Breast form (prosthesis) fitting

Royal Stoke Hospital 01782 674201

County Hospital 01785 886010

 

Breast Imaging department UHNM (mammogram appointments)

Tel: 01782 674200

 

Breast Screening Unit North Midlands

Tel: 0300 123 1463

 

Dove Centre Counselling Service

The Dudson centre, Hope St., Hanley, Stoke on Trent

Tel: 01782) 683155.

Also available through the MacMillan Cancer Information Centre

Tel: 01782 676333

 

Lymphoedema Service UHNM

Royal Stoke 01782 676688 or email lymphoedemaclinic@uhnm.nhs.uk

County (Katherine House Hospice) 01785 270800 or 270870

 

MacMillan Cancer information and support centre UHNM

Offers free information and support and confidential benefits advice for all patients

with a cancer diagnosis  Tel: Royal Stoke 01782 676333 County 01785

 

Staffordshire Cancer Support Programme (CaSP)

A partnership between the Beth Johnson Foundation and Macmillan Cancer Support to provide links to social, emotional & practical support for adults affected by cancer

Tel: 01782 844036 or you can email us at macmillan@bjf.org.uk

University Hospital North Midlands Switchboard Tel: 01782 715444

 

National contacts

Breast Cancer Care –for information & support

Also offers specific support for younger women, lesbian women and women with secondary breast cancer.

Tel: 0808 800 6000

E-mail: info@breastcancercare.org.uk

Website: www.breastcancercare.org.uk

 

Breast Screening (National)

Tel: 020 3682 0890

 

Casting for Recovery UK & Ireland

Tel: 020 7840 9220

Web site: www.countryside-alliance.org/charity/casting-for-recovery-uk-ireland

 

Citizens Advice

Tel: 03444 111 444 

Web site: www.citizens advice.org.uk

 

Look good, feel better workshops

Tel: 01372 747 500          

Web site: www.lookgoodfeelbetter.co.uk

 

Lymphoedema Support Network (LSN)

The LSN provides information and support to people with Lymphoedema

Tel: 020 7351 4480

 

MacMillan Cancer Support

Cancer information helpline 0808 808 00 00

www.macmillan.org.uk

 

Marie Curie Cancer Care

(Provides free nursing care and support to patients and families)

Tel: 0800 0902309

Website: www.mariecurie.org.uk

 

Medicines Information Service

Tel: 0121 424 7298

 

NHS cancer screening programme

Fulwood House, Old Fulwood Road, Sheffield S10 3TH

Tel: 0114 271 1060. email: info@cancerscreening.nhs.uk

We are committed to improving cancer prevention, diagnosis and treatment through world-class research.

We have a leading clinical research unit and work closely with cancer research charities to deliver high quality research.

Clinical trials we have been involved with have led to important breakthroughs in breast cancer prevention, diagnosis and treatment.

Many of our patients will be offered entry into a clinical trial as part of their treatment.

This may allow early access to new treatments. Evidence shows that patients who enter clinical trials often have a better outcome.

One of the many studies that we have recruited breast cancer patients to is the 100,000 genome project. This national study aims to use genetic information from patients with cancer to develop new techniques for prevention, diagnosis and treatment. 

For more information about participating in a clinical trial, click here:

https://www.breastcancercare.org.uk/information-support/facing-breast-cancer/going-through-treatment-breast-cancer/clinical-trials

Breast Cancer Facts

• Breast cancer is the most commonly diagnosed malignancy

• It is the second leading cause of death in women

• 1 in 8 women will be affected by breast cancer during their life

• Obesity and lack of exercise can greatly increase your risk of getting breast cancer and other illnesses

Reducing your risk of breast cancer

Breast cancer is very common and usually cannot be prevented. Many factors that affect our risk of breast cancer (such as getting older) are out of our control and their effect cannot be changed.

However, research shows that some things you can do may reduce your risk of getting breast cancer or improve your chance of survival if you do get breast cancer. These include:

  • Keeping a healthy weight
  • Taking regular exercise - increasing your physical activity can reduce your risk of dying from breast cancer
  • Reducing your alcohol intake
  • Being breast aware and seeing your doctor early if you notice a breast problem.
  • Eating a healthy diet (avoiding excess sugars, eating regular fruit and vegetables and reducing saturated fats)
  • Stopping smoking

 

The importance of exercise

56% of people in the UK do no exercise, but remember - anyone, any age can exercise and have fun! 

It is recommended to take at least 30 minutes of moderate physical activity 5 x a week. When combined with muscle strengthening activity at least 2 x a week this can:

• reduce the risk of breast cancer death by 50%

• reduce the risk of bowel cancer death by 50%

• reduce the risk of death by diabetes by 42%

• reduce the risk of getting diabetes by 40%

• reduce the risk of having a stroke or heart disease by 40%

It doesn't have to be hard though...

Physical activity is any bodily activity that enhances or maintains physical fitness and overall health or working hard enough to raise your heart rate and break a sweat – to the point where you can talk but not sing. For example:

  • Walking fast

  • Running up and down the stairs

  • Riding a bike up a few hills

  • Doubles tennis

  • Swimming

  • Water aerobics

Evidence that it works:

  • Moderately overweight women can reduce their risk of breast cancer by 25%

  • Obese post-menopausal women have a 30% Increased risk of breast cancer vs women of a healthy weight

Remember - do anything, rather than nothing!

If you are interested in learning more about factors affecting your risk of breast cancer, follow this link

https://www.breastcancercare.org.uk/information-support/have-i-got-breast-cancer/am-i-risk-breast-cancer

Breast awareness

It is important to be breast aware so that you feel more confident about noticing any breast changes that are unusual for you and going to see your GP (local doctor) about them.

Most breast changes aren't because of breast cancer, but the sooner breast cancer is diagnosed, the more effective treatment may be.

Men also need to be aware of any changes in their chest area as around 340 men in the UK get breast cancer each year.

If you care for someone with learning disabilities, you may want to use the breast cancer care information resources about breast awareness designed to help people with learning disabilities with the support of their carer. You can find these on the Breast Cancer Care website at:

https://www.breastcancercare.org.uk/information-support/have-i-got-breast-cancer/supporting-people-learning-disabilities

Being Breast aware

https://www.breastcancercare.org.uk/information-support/have-i-got-breast-cancer/signs-symptoms-breast-cancer

https://www.breastcancercare.org.uk/sites/default/files/publications/pdf/bcc2_know_your_breasts_2016_web.pdf

Not just a lump poster

https://www.breastcancercare.org.uk/sites/default/files/publications/pdf/breast_awareness_a3_poster_2017_v.5_final.pdf

What are the signs of breast cancer video (Breast Cancer Now)

https://breastcancernow.org/about-breast-cancer/want-to-know-about-breast-cancer/what-are-the-signs-and-symptoms-of-breast-cancer

 

I have a breast symptom

Common breast symptoms include:

  • A lump in the breast or under the arm
  • A change in the shape or size of the breast
  • Puckering or dimpling of the skin
  • Changes to the nipple
  • Bleeding or discharge from the nipple
  • Rash on or around the nipple
  • Pain in one or both breasts (link to breast pain booklet + breast pain chart)

 

What happens if I have a breast symptom?

If you develop a breast symptom that you are concerned about you should make an appointment to see your GP (your own local doctor). Your GP will take the details of your symptoms and perform a clinical breast examination. GPs follow national guidelines to decide whether or not to send you to a breast clinic. Many symptoms can be managed by your GP and you may not need to be seen in the specialist breast clinic. If you have a new change in your breast such as a definite lump, puckering or dimpling, changes to your nipple, including a rash or discharge, or severe and persistent breast pain, they will usually send you to the hospital for a specialist opinion. If a specialist referral is necessary your GP will send a request to the Breast Care Team here at UHNM. You will be offered an appointment within 2 weeks of the receipt of your referral. Because of this, you may be contacted by telephone and offered an appointment at very short notice. Do not be alarmed. This is the normal procedure to enable you to see a specialist quickly when you have symptoms which are worrying, either to yourself or your doctor. It is important you inform your GP if you will not be able to attend at short notice.

It is important to tell your GP of when and where you last had a mammogram or any other breast imaging.

Whether you have been asked to attend the breast clinic after being referred by your GP or called for assessment following routine screening, you may feel worried or frightened that you might have breast cancer. Different people find different ways of coping during this uncertain time. It may help to talk things through with friends or family or your GP, or to keep yourself busy and active.

Although these feelings are likely to continue until you get your results, it may be reassuring to know that most breast problems are benign (not cancer).  However in a small number of cases, these further investigations may lead to a diagnosis of breast cancer. Prompt diagnosis means that treatment can begin as early as possible

I am a man with a breast symptom

Most breast tissue in men is concentrated in the area directly behind the nipple and the surrounding pigmented area, called the areola. It is this area and underneath the armpits that you should check regularly, looking for any unusual changes. The most common breast symptoms found in men are predominantly the same as found in women. They can be found in one or both sides of breast tissue and include:

  • A lump in the chest/breast area or in your armpit
  • Pain/tenderness around the nipple
  • Swelling of the chest around the nipple

For further information on male breast examination, click here.

https://breastcancernow.org/about-breast-cancer/what-is-breast-cancer/breast-cancer-in-men/signs-and-symptoms-of-breast-cancer-in-men?gclid=CJjxyrbjntICFTcz0woddmEIzQ

The first thing you should do if you have one or more of these symptoms (especially a lump in your chest area or under your arm), is to go and see your GP.  Often, the GP will be able to assess and treat your symptoms, however you may need to be referred to the 'New Patient Clinic' at your local Liverpool dedicated Breast Unit.

At the clinic you will be asked about your symptoms, other health problems, medications and lifestyle. You may also have some blood tests, a scan or a biopsy (needle test).

Men and boys can sometimes develop more breast tissue than normal, due to a condition called Gynaecomastia. This is a benign (non-cancerous) swelling of the male breast tissue, and is not related to cancer.

Breast Cancer Care have produced a booklet with information on this condition:

https://www.breastcancercare.org.uk/information-support/have-i-got-breast-cancer/breast-pain-other-benign-conditions/gynaecomastia

Breast cancer facts

 

 

 

 

 

 

 

  •  

     

     

     

     

     

     

    Breast cancer is the most commonly diagnosed malignancy

     

     

     

     

     

     

     

  •  

     

     

     

     

     

     

    It is the second leading cause of death in women

     

     

     

     

     

     

     

  •  

     

     

     

     

     

     

    1 in 8 women will be affected by breast cancer during their life

     

     

     

     

     

     

     

  •  

     

     

     

     

     

     

    Obesity and lack of exercise can greatly increase your risk of getting breast cancer and other illnesses

     

     

     

     

     

     

     

 

 

 

 

 

 

 

 

 

 

Reducing your risk of breast cancer

Breast cancer is very common and usually cannot be prevented. Many factors that affect our risk of breast cancer (such as getting older) are out of our control and their effect cannot be changed.

However, research shows that some things you can do may reduce your risk of getting breast cancer or improve your chance of survival if you do get breast cancer. These include:

 

  • Keeping a healthy weight

  • Taking regular exercise - increasing your physical activity can reduce your risk of dying from breast cancer

  • Reducing your alcohol intake

  • Being breast aware and seeing your doctor early if you notice a breast problem

  • Eating a healthy diet (avoiding excess sugars, eating fruit and vegetables regularly and reducing saturated fats)

  • Stopping smoking

 

Remember, anyone, any age can exercise and have fun! However, 56% of people in the UK do no exercise.

 

It is recommended to take at least 30 minutes of moderate physical activity five times a week. When combined with muscle strengthening activity, at least twice a week, this can:

  • Reduce the risk of breast cancer death by 50%

  • Reduce the risk of bowel cancer death by 50%

  • Reduce the risk of death by diabetes by 42%

  • Reduce the risk of getting diabetes by 40%

  • Reduce the risk of having a stroke or heart disease by 40%

 

It doesn't have to be hard...

 

Physical activity is any bodily activity that enhances or maintains physical fitness and overall health or working hard enough to raise your heartrate and break a sweat – to the point where you can talk but not sing. For example:

  • Walking fast

  • Running up and down the stairs

  • Riding a bike up a few hills

  • Doubles tennis

  • Swimming

  • Water aerobics

 

Evidence that it works:

 

  • Moderately overweight women can reduce their risk of breast cancer by 25%

  • Obese post-menopausal women have a 30% increased risk of breast cancer vs women of a healthy weight

 

Do anything, rather than nothing!

 

If you are interested in learning more about factors affecting your risk of breast cancer, click here.

 

Breast awareness

It is important to be breast aware so that you feel more confident about noticing any breast changes that are unusual for you and going to see your GP (local doctor) about them.

Most breast changes aren't because of breast cancer, but the sooner breast cancer is diagnosed, the more effective treatment may be.

Men also need to be aware of any changes in their chest area as around 340 men in the UK get breast cancer each year.

If you care for someone with learning disabilities, you may want to use Breast Cancer Care information resources about breast awareness designed to help people with learning disabilities with the support of their carer. You can find these on the Breast Cancer Care website:

Have I got breast cancer - supporting people with learning disabilities
Have I got breast cancer - signs and symptoms
Know your breasts
Breast awareness
What are the signs of breast cancer?  - Video from Breast Cancer Now

 

 

I have a breast symptom

Common breast symptoms include:

  • A lump in the breast or under the arm
  • A change in the shape or size of the breast
  • Puckering or dimpling of the skin
  • Changes to the nipple
  • Bleeding or discharge from the nipple
  • Rash on or around the nipple
  • Pain in one or both breasts 


What happens if I have a breast symptom?

If you develop a breast symptom that you are concerned about you should make an appointment to see your GP (your own local doctor). Your GP will take the details of your symptoms and perform a clinical breast examination. GPs follow national guidelines to decide whether or not to send you to a breast clinic. Many symptoms can be managed by your GP and you may not need to be seen in the specialist breast clinic. If you have a new change in your breast such as a definite lump, puckering or dimpling, changes to your nipple, including a rash or discharge, or severe and persistent breast pain, they will usually send you to the hospital for a specialist opinion. If a specialist referral is necessary your GP will send a request to the Breast Care Team here at UHNM. You will be offered an appointment within two weeks of the receipt of your referral. Because of this, you may be contacted by telephone and offered an appointment at very short notice. Do not be alarmed. This is the normal procedure to enable you to see a specialist quickly when you have symptoms which are worrying, either to yourself or your doctor. It is important you inform your GP if you will not be able to attend at short notice.

It is important to tell your GP of when and where you last had a mammogram or any other breast imaging.

Whether you have been asked to attend the breast clinic after being referred by your GP or called for assessment following routine screening, you may feel worried or frightened that you might have breast cancer. Different people find different ways of coping during this uncertain time. It may help to talk things through with friends or family or your GP, or to keep yourself busy and active.

Although these feelings are likely to continue until you get your results, it may be reassuring to know that most breast problems are benign (not cancer).  However in a small number of cases, these further investigations may lead to a diagnosis of breast cancer. Prompt diagnosis means that treatment can begin as early as possible

 

I am a man with a breast symptom

Most breast tissue in men is concentrated in the area directly behind the nipple and the surrounding pigmented area, called the areola. It is this area and underneath the armpits that you should check regularly, looking for any unusual changes. The most common breast symptoms found in men are predominantly the same as found in women. They can be found in one or both sides of breast tissue and include:

  • A lump in the chest/breast area or in your armpit
  • Pain/tenderness around the nipple
  • Swelling of the chest around the nipple

For further information on male breast examination, click here.

The first thing you should do, if you have one or more of these symptoms (especially a lump in your chest area or under your arm), is to go and see your GP.  Often, the GP will be able to assess and treat your symptoms, however you may need to be referred to the 'New Patient Clinic' at your local Liverpool dedicated breast unit.

At the clinic you will be asked about your symptoms, other health problems, medications and lifestyle. You may also have some blood tests, a scan or a biopsy (needle test).

Men and boys can sometimes develop more breast tissue than normal, due to a condition called Gynaecomastia. This is a benign (non-cancerous) swelling of the male breast tissue, and is not related to cancer.

Breast Cancer Care have produced a booklet with information on this condition.

 

I have a family history of breast cancer

One in eight women will develop breast cancer. Therefore many women and men will have a family member diagnosed with breast cancer on their mother's or father's side. In most cases this will not increase the risk of other family members developing breast cancer.

However you may be at risk of developing breast cancer if there is a strong family history of the disease.

You may have increased risk if you have:

  • A mother or sister diagnosed with breast cancer before the age of 40
  • Two close relatives from the same side of the family with breast cancer (at least one must be a mother, sister or daughter)
  • Three close relatives diagnosed with breast cancer at any age
  • A father or brother diagnosed with breast cancer at any age
  • A mother or sister with breast cancer in both breasts (the first cancer diagnosed before the age of 50) 
  • One close relative with ovarian cancer and one with breast cancer (diagnosed at any age; at least one must be a mother, sister or daughter).


For more information about breast cancer in families, click here.

 

If you are concerned you may be at risk because of your family history of breast cancer you should complete a family history form. Your GP should sign it and send it to the genetics clinic in Birmingham. The clinic uses evidence-based research in the assessment process. The assessment is a process where family and personal information is gathered.

If you are found to be at increased risk of developing a breast cancer you may be offered referral for genetic testing, early screening or preventative treatments.

Adapting to life after breast cancer treatment can be difficult.

When you have completed your initial Breast Cancer treatment you will be offered an end-of-treatment review with a Breast Advanced Nurse Practitioner and entry into the self-managed pathway.

The appointment is an opportunity to review your treatment and how you are feeling and ask any questions. There may be outstanding issues or concerns which can be addressed.

We can offer advice and support about managing symptoms and side effects of treatment.

You will be provided with a treatment summary and ongoing plan for you and your GP and an information pack.

You will have the opportunity to be referred to other services for support such as:

  • Breast Cancer Care 'Moving Forward' workshops for patients
  • 'Living well, with and beyond cancer' events by Macmillan Cancer Support and Penny Brohn
  • Support groups

The self-managed pathway (SMP) offers open access for patients who have had breast cancer treatment. This means you can continue to access support and advice about your breast cancer treatment, side effects and breast related health. Any new concerns should be reported to a Breast Advanced Nurse practitioner via the SMP team and a prompt appointment with the Breast Specialist Team will be made if required.

Please contact our Macmillan Support worker on 01782 674077

Your guide to Self-Managed Care - Patient Information

More information about Breast Cancer Care 'Moving Forward' Courses

Living well with and beyond cancer events 

 Breast Cancer Care app

The need for support doesn't end when treatment does. If you're struggling to find your 'new normal' after breast cancer BECCA, the Breast Cancer Care app, gives you information, support and inspiration to help you move beyond breast cancer, presented on easy-to-use flashcards.

To download the BECCA app search for it on the Apple App Store or Google Play.